Thursday, August 27, 2009

Information from the Neurosurgeon

Well John has two things wrong with his brain (I know, I know you thought there were many more than that).

1. Cavernoma – he has a spot on the left side of his brain which the neurosurgeon suspects is a cavernoma. Apparently a cavernoma is a leaky blood vessel. The doctor does not believe this is what is causing his symptoms: right side weakness, headaches, vision problems, etc… However, this area must be looked at more closely to confirm the doctor’s suspicions that it is not the main culprit.
2. Chiari Malformation – John also has a Chiari Malformation at the base of his brain. Basically, his brain is sinking into the top of his spinal column and putting pressure onto his spinal cord. The doctor suspects this is what is causing the symptoms. The solution for this is brain surgery.

What is the gameplan? It’s gonna move pretty quickly. Apparently the quicker this is resolved the more likely that John’s right side weakness and other symptoms will be resolved and not be permanent.

1. Tomorrow he goes to Hartford Hospital for an MRI of his cervical spine.
2. Monday he goes to St. Luke’s (in Milwaukee) for an angiogram of his brain.
3. Thursday we go back to the neurosurgeon to see if brain surgery is the recommendation.

Prayer, prayer, prayer, prayer, prayer! We need PRAYER!

1. Wisdom for the doctors, nurses, technicians, etc…. to figure this out for sure and come up with the proper plan of action.
2. Complete and total healing. Whether through God’s miraculous intervention or through the healing hands of the doctor doing surgery….beggars can’t be choosers. We will take it however we can get it.
3. Practical matters: caring for the kids during all of this, paying the bills if John ends up out of work for surgery, short-term disability, FMLA, how much sick time does he have left, etc, etc, etc…

As far as the children go: Alex is in Afghanistan and will find out what he needs to know when he needs to know it. Amanda and Amber are adults and we are including them on everything we know. Noah, Jeremiah, Elijah and Hannah are way too young to process this. We will be telling them in bits and pieces on an as need basis. For example, Monday they will be with my sister Cori all day, and they will know that Daddy has to have a better picture taken of his brain. If any of you have chance to talk with any of them about this, we wanted to make sure you know what we are telling them.

We are exhausted, a bit overwhelmed, but completely secure in the verse that closes every e-mail I send: He knows the plans He has for us and they are plans to prosper us and not to harm us… plans to give us hope and a future. Thank you in advance for your prayers.

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